On March 28th I got a call from a transplant
nurse. Little did she know she had just interrupted a primal scream which
included the words: Why me? She was so nice on the phone I immediately flushed
with embarrassment. The result of my bone marrow biopsy was good. My bone
marrow had been 90% full of plasma cells in December. It needed to be less than
20% to have the transplant. The chemotherapy had reduced it to 4%. She said she
would email me a schedule of pre-transplant hospital visits and tests. I felt as if I was on an express train
to the haematology wing. I went on the
treadmill to get rid of the excess nerves. As each foot hit the conveyor belt I
repeated:
“You’re going to be
alright.”
Meanwhile the butterflies in my stomach felt like they had wings the
size of an eagle’s.
The “peripheral
blood stem cell collection schedule” came via email. It was horrendous to look
at. First there were blood tests, high dose chemotherapy then a vein assessment
at NZ blood service in Epsom. They would determine if the veins in my arms
could support the transfer of blood for the stem cell collection or if I would
have to have a central line put in my neck. Four days after the assessment I
would start GCSF injections…at home.
“What?”
No one had mentioned this. Did I have to give myself shots?
I couldn’t even look when a fake needle was pressed against an actor’s arm in a
TV medical show. How was I supposed to do this?
Five days after
the shots I would go through the stem cell collection. The transplant would be
about 6-8 weeks after collection.
I could not fight
the butterflies. So I went back to Dr Internet to look up relaxation therapies.
The main one was to talk through your muscle groups and deep breathe. You
imagined the heaviness of each part of your body then let it go limp into the
bed. Feet, legs, buttocks, hands, arms, you had to imagine each one weighing a
ton so you couldn’t lift it. It was helpful but it was impossible to stop my
heart beating so fast.
One night I fell
asleep picturing the Auckland doctor. I was angry because she made me feel
hopeless. Two things she said ran through my mind. First, that the medical
community had been “too positive” with me, and second that “even the allogeneic
patients get their disease back”. I woke
with a start, thinking:
“You know what
bitch? I’m going to prove you wrong. People survive this, maybe not many, but
they do, and telling me not to be positive is really shitty.”
April 24th
was D-day in my mind. It was the first appointment on my peripheral blood stem
cell collection schedule. Although it was only a blood test it signified the
first stop on the bumpy road that led to the transplant. Usually the bloodletting at the local
lab wasn’t too bad. The technician would point you towards one of about five
little rooms, each set out the same. There was a plastic chair with sturdy arms
and a small desk with a shelf above containing tubes, plasters and cotton pads.
A metal cart carried a pillow and a plastic bowl for putting test tubes in.
Once you were seated, they put the pillow under your arm, strapped your upper
arm tight with a tourniquet and tapped the inside of your elbow to find a good
spot to get into the vein. There would be a slight sting when the needle went
in, then usually not much pain. In a moment the tubes, sometimes one, sometimes
up to four, were filled with my blood. But on this day the vampire who pierced
my arm felt like she was out for revenge. When she stabbed me it hurt like
hell. I felt like she was piercing my arm with a screwdriver rather than a thin
needle. As a result my body defended itself, my vein shrunk away and the blood
came out as slow as syrup.
“You’re
running out,” the vampire said with an evil laugh.
I was shocked. Was it possible to
actually run out of blood? I returned her evil laugh with a nervous chuckle.
“Maybe
you’re dehydrated. It’s a hot day.”
We both looked toward the open window.
It was New Zealand. It never got that hot. I hadn’t broken a sweat all day.
Unsatisfied, she
took the needle out, put a plaster over the gaping hole on my arm and inspected
my left arm. Deciding there were no good veins there either, she turned her
attention back to my right arm.
“Darn.”
Someone with a needle
hovering over you saying anything like “darn” is not a good thing. She decided
the first needle was somehow faulty, got a new one and stabbed at my right arm
again. I cowered in pain. I made a
mental note to never come to this lab on Thursday afternoons again. You think
practice would make perfect. I wanted to suggest she go home and puncture her
husband or at least stab an orange with a syringe a few times until she got the
hang of it. I ran out of there like a wounded rabbit. I hoped it wasn’t a sign
of things to come.
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