. For the next four days I would take steroids in the form
of dexamethasone. In a week I would start the chemotherapy drug
cyclophosphamide. Every Wednesday I was to get a further blood test at the
local blood lab. I would see him in six
days’ time when he would share the results of the bone marrow test and the
x-rays I would have today. In six days he would know if there was any point to
further treatment. He made no promises for my future. I felt like I was in the
middle of a hurricane trying to hold on to a concrete pole with my little
finger.
This began the
yin and yang of how Alex and I saw my disease. Alex saw me starting treatment
immediately as a positive thing, in other words, that my disease was actually
treatable. I saw the other side. My disease was so bad there wasn’t another day
to lose. Alex said something about us running Round the Bays in 2012. I was
certain I would be lucky to live another year. He thought the whole meeting
with the doctor was rather hopeful. I was sure I would be dead by Christmas.
Alex took the
list of prescriptions down to the hospital pharmacy and got them filled. There
was going to be a bag full of them and I thought how unbelievable it was that I
had never been on any serious medication my whole life and now I was going to
have a shopping bag full.
When Alex left
the room I was completely alone. I had another bout of crying. A nurse who must have heard the pathetic
whimpering from outside my open door, came to my bedside. She was in her late
fifties and stood only about five feet tall. She had died black permed hair
with just a hint of grey roots showing. She pushed her black glasses further up
her nose, opened her arms wide and gave me a conciliatory hug.
“I’m sorry,” she
said sincerely.
My new identity as a cancer patient had begun.
“You look like
you’ve been crying all day. Go home and have a glass of wine,” she added.
I nodded. I planned to have a bottle.
She stood back
and looked at me seriously.
“Stay off the
internet because things can look a lot worse than they are. Everyone is an
individual and not going to cope in the same way.”
“Okay. I will
read the pamphlets and stay off the internet.” I agreed.
It was a complete lie. I knew I would be hungry for more
information. She took my blood pressure one more time. It was 170 over 110.
When Alex
returned he said he had rung Charlotte with the news. She was at a friend’s
house. I wished he hadn’t told her over the phone. I would rather have told her
in person. It’s the sort of news that should come with a hug.
We left the
haematology ward with our brown paper bag full of medicine whose names I
couldn’t yet pronounce, and found our way through the halls to x-ray. I was
glad I didn’t have to find it on my own. Through my teary confusion I would
have wandered aimlessly but Alex, who had turned back into my rock, guided our
way. A young man who looked more like a rugby player than a radiographer
instructed me to lie on a bed. He was extremely efficient. He quickly took full
body, head and neck, and hip /pelvic bone x-rays. With all the twisting and
turning to capture images, I realised his physique probably came in handy when
obese patients needed moving.
After the x-rays
we headed home. We stopped off and bought two bottles of wine at Foodtown. When
we got to the house I rushed inside. Charlotte was home alone and I wanted to
see how she was coping. She knew what the diagnosis was so I could only add:
“It was a
terrible day”. (My yin)
“It’s bad news
but it’s not disastrous”. (Alex’s yang)
She was very
strong. She listened and asked questions. She nodded but didn’t cry. She hugged
me again. She would be my concrete pole in the hurricane. She would keep me
from disappearing in the storm. I drank a lot of wine and went to bed in a
stupor.
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